The Time Will Arrive
CHAPTER 4 GENETIC DISORDERS OF MY SISTER
my sister was born with Down syndrome, a genetic disorder on chromosome 21. Normal humans generally have 46 chromosomes that contain genes carrying the traits of both parents.
nadia's case falls on trisomy type 21, meaning she has an extra chromosome on her twenty-first chromosome pair bringing the number of chromosomes to 47.
no one knows for sure what causes this genetic disorder.I think every baby who is born should be given an equal chance to live a normal life, and this is not fair to nadia.
when mom and dad brought Nadia home for the first time, I remember both calling me with serious expressions.Mama's eyes were covered with tears, while Papa tried to hold back emotions. what a stark contrast to the atmosphere of the nursery meeting the colorful underwater world just a few months before they were ready to welcome my sister to our home.
Papa said, Nadia had trisomy 21, and tried to explain it as simple as possible so that it could be understood by me who was 12 years old at the time.
mama said, it's not that Nadia is not normal, only that she will be different from the other kids. Their statements are contradictory and confusing. All I saw was a tiny baby with closed eyes, reddish skin, and tightly-blown lips.
Indeed, Yaya's head wasn't very big and her nose was a bit flat, but to me, she was the funniest baby I've ever seen. Later, I just realized the meaning of a different word' Mama Mentioned.
different means Nadia does not grow as fast as children her age. Abnormalities of chromosome development makes Nadia experience physical and mental retardation.Other children find it strange because of the look of her face, tongue that often protrudes out, and his neck is short.
when at the age of a year children are usually able to stand up and say the first word, Nadia Baru did at the age of 3 years. not to mention the Visio and speech therapy that must be done every day at a therapy center for children with special needs, which means Mama and Papa must change the change of delivery and pick him up every day.
Initially, my parents' quarrels revolved around Nadia, Are they supposed to put gifts into public school, Why is the development not as fast as Hope, Why my sister still has trouble mingling with others. How their financial obligations add up along with their particular needs.
which makes Mama forced to return to work, how they accuse each other because they do not have enough time to accompany Nadia.
How they react when there are business partners or relatives who arrive and comment on my brother's condition.
over time, the quarrel corrected the Side of the surface and about something deeper behind it. Criticism turned into a mockery full of sarcasm, he said, the dissatisfaction in their relationship now that ended in Giant rarely did they spend time together.
feeling tired in the face of each other, and so on, and so on.
all I ask is one, if love is strong enough to be present between them from the beginning, why is it so easy for love to walk away?
why do they let it all happen so easily?
soon there will be a meeting week of parents and teachers at my school.This means that teachers will talk about our grades, the midterm exam which will soon be arriving, and in my case, it will be, How club activities and upcoming matches affect my performance in the classroom.
the official invitation printed on white cardboard paper with gold border, the typical color of our school, has been tips shared since a few days ago, the statement said, which means I have to hand it over to Papa and Mama right away. I sat down with a pair of envelopes bearing the names of my parents, who were lying on the study table for days, unable to delay any longer.
after lingering to make sure my uniform is neat, the contents of my Bag are complete, and other non-essential things that I generally do not pay too much attention to.
sure enough, Mama was sitting in one of the pantry chairs located in front of a marble, a cup of warm tea held in both hands. faint Aroma Melati out, the, it reminds me of a childhood when my mom and I pretended to say a royal party in the playroom.
we both sat on plastic chairs and poured each other drinks like Poci Tea like two inseparable friends, me the little girl, and mama my favorite person in the whole world.
However, Mama who is now here is not the woman who is like before, her long hair Tied Behind her head, but, the neat form required by the bank where he worked his uniform without gaps and high heels made him look tough.
do not forget her face on the island of Seriasan, ending with a touch of pink lipstick that makes Mama look very beautiful. always so, however, it is, when I looked into her eyes and hoped to find my reflection reflected there, I knew that Mama was no longer looking at me.
when I saw Mama who had changed too much, I felt so many emotions spill into one, sad, disappointed, and angry.the feelings I can not explain one by one, I can not explain one by one, just groping from the inside and slowly turning into a void. This house has been empty for a long time, it's just that we all pretend not to feel it.
''mah''
Mama didn't realize that I was standing behind her, staring at her bowed back, the resistance with the image of a successful career woman she could show to the world.
the sad expression I sometimes caught when he was careless vanished instantly, replaced by a defensive look that made him feel a step further from where I was.
''tina'' her voice was slow, then mama dehem once. ''what is it?''
hesitatingly, I handed over his invitation.''This is an invitation from my school, right on Sunday.''
Mama puckered her nose.again? What time?''
it seems like Mama forgot that the last time she attended a school meeting was during my Raport pickup 2 years ago, last year Mama was out of town, and I brought my own Raport home.
'' 01:00 noon, come yes, ma. Ms. Nana said there was a lot to say.''
that anxious look came back.' about what? your value is not declining anymore, is it?''
last year, I was down because I was too busy with the club.The coach made sure it didn't happen again or I was out of the team, and since then I've never stopped improving my grades to stay above average.
I'm not very good at learning, especially math, it's Arga's part, but I always try, if Mama sees that.
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